FASD Communities Survey

FASD Communities is an organization comprised of volunteers, each of whom has been affected by FASD in different ways. We need your help understanding  which subsets of those living with an FASD may have the greatest need for and may benefit the most from our efforts. If you have a loved one over age 18 with an FASD (diagnosed or suspected) and an IQ above 70, please take a few moments to complete this survey (link above). Please complete the survey only one time. We encourage you to forward the survey to other caregivers and young adults living with the challenges of FASD. 

What Is Fetal Alcohol Spectrum Disorder (FASD)?

FASD is an umbrella term describing a range of effects that can occur in a child exposed in utero to alcohol.  FASD is a major cause of learning disabilities, school failure, homelessness, and unemployment. They are disproportionately represented in the criminal justice system.

  • Each year as many as 40,000 babies are born with FASD in the U.S.
  • The majority of those affected show few, if any, physical signs of disability.
  • Because some symptoms are similar, FASD is commonly misdiagnosed as ADHD, Bipolar Disorder, and Oppositional Defiant Disorder.
  • FASD is more prevalent than autism, Down syndrome, muscular dystrophy, and spina bifida combined.
  • Thousands of adults are living with this disorder today, including many of whom have never been diagnosed.  They fall between the cracks and are unable to access services or supports of any kind.

Cause of FASD:

It’s simple. FASD is caused by a woman drinking alcohol during pregnancy. 

    • Alcohol is a teratogen (an agent that alters the normal development of a fetus) and is considered more damaging than other drugs. It crosses the placenta, destroying brain cells and causing lifelong impairments. (See video here.)
    • There is no known amount of alcohol that is safe to drink while pregnant.
    • There is no safe time to drink during pregnancy.
    • Today, one in eight pregnant women in the US report alcohol use in the past 30 days. One in 50 have reported binge drinking in the past 30 days (five or more drinks at one time).
    • Fetal Alcohol Spectrum Disorders are 100% preventable. 

 

Moment to Moment Documentary about young adults with FASD

If you’re interested finding out more about FASD or would like to hear the testimony of those affected by this condition, we encourage you to purchase and watch this documentary created by NTI Upstream. For a special FASD Communities discount, please go to www.ntiupstream.com/moment and enter code “FASDHI” in the “coupon” box at checkout.

Synopsis: Moment to Moment – Teens Growing Up With FASDs explores the lives of four adolescents with FASDs (Fetal Alcohol Spectrum Disorders) and the effect that prenatal alcohol exposure has had and continues to have on their journeys to finding independence, fulfillment, and understanding the world around them. Moment to Moment: Teens Growing Up With FASDs takes an intimate and eye-opening journey into the lives of those affected by FASDs, their families and friends, and captures the challenges that families must overcome as children with FASDs reach maturity and attempt to strike out on their own as young adults.